[CyberTOPS] Barbara T - Roll Call+

[ddouty01]

Try to do as you plan and keep your chin up and eye open.  I can only 
imagine your pain and frustration.
take care,
Laurie D
----- Original Message ----- 
From: "Barbara T (aka TopsyKatinKS)" <topsykatinks at yahoo.com>
To: "CyberTOPS" <cybertops at cybertops.net>
Sent: Wednesday, June 17, 2009 3:15 AM
Subject: [CyberTOPS] Barbara T - Roll Call+


> Not good, but not surprised. Had a gain of 2.6 pounds this week but still
> having problems with medication.
>
>
> My thanks to all who sent their prayers heavenward and encouragement on
> here
> last week. My rheumatologist is very conservative in treatment
> plans and I
> still can't seem to convince him and his PA that I know
> what will work to
> alleviate my symptoms. The good news is that my lupus
> has not flared up again
> but my Sjogren's is worse (yet they didn't
> adjust my meds). Additionally it
> seems that my fibromyalgia has
> "morphed" into MPS (Myofacial Pain Syndrome).
> So the fun continues and
> I will just have to learn to live with the pain as it
> is primarily in
> the nerves and muscles so there is little that can be done to
> alleviate
> it. That does not mean I am going to give up. I will exercise as
> much
> as I can and continue to watch what I eat, as well as doing some
> research
> on my own into ways to help myself.
>
>
> Contrary to what they think, doctors don't know everything. I read of a
> case
> the other day where an 18-year-old girl had been having problems
> for years and
> the doctors just kept saying it was IBS, it was stress,
> it was this and it was
> that. She was taking a class in biomedical
> science at school and took her own
> intestinal tissue sample to school
> and looked at it under the microscope and
> saw the granulomas that
> indicated Crohn's disease. She took the slide to her
> doctor and
> insisted it be examined and her diagnosis was confirmed.
>
>
> Sadly, all too often, whether the doctor is male or female, a woman's
> symptoms are too often ignored. Had a man presented with the same
> symptoms
> they would most likely have been all over it. I saw the
> results of an
> experiment where a panel of doctors was shone two videos,
> one of a female and
> one of a male, describing identical symptoms. EVERY
> doctor said had they seen
> the female patient she would have been told
> it was heartburn and given a
> script then sent home. But the male
> patient they stated they would have sent
> immediately for cardiac
> tests.  Go figure!!
>
>
>
>         TOPS #KS 948, Wichita
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